It’s the fear of the unknown that first enters mind after you are told that your child has hearing loss. Whether your child is identified with a moderate or a profound hearing loss there are questions and scenarios that spiral out of control in your thinking. Your child’s entire life flashes before your eyes and it is filled with a series of unknowns.
This state of not knowing is difficult for a parent to be in. You are supposed to be the one in charge, you are supposed to be the one that protects and watches out for your child, but how can you do this if are not even sure of the challenges that your child will face?
I remember when my son was diagnosed three years ago with late onset hearing loss. Shortly after his third birthday we were informed that he had a moderate to severe hearing loss and would need to wear hearing aids for the rest of his life. Despite the fact that according to the calendar he was now three, he was assessed at functioning, language and communication wise, at the level of an 18 month old.
Difficult news to swallow given that neither my husband, nor I, had any exposure to either children or adults who had hearing loss. In fact 95% of parents of all children who are diagnosed with hearing loss are born to parents who have typical hearing, so we were definitely not alone in our feelings of isolation.
But what has been amazing about our journey is the way that we have been included and accepted in a community of parents who are also striving to find out what works best for their children and how they are going about it. Support will come from places that you don’t even know exist yet, and at this point what is most important is to take a step back from everything. You aren’t expected to know everything and that is okay.
Take it a day at a time, a month at a time. Knowing that as soon as you have things figured out something else will come along – a change in therapist; a failed device – something that will through you off course. But, that is okay because as you take it a day at a time you will also gain strength and confidence and you will be more adept at growing and changing with the needs of your child.
- Living With Severe Hearing Loss (webmd.com)